APS Support UK

APS Support UK is a national UK charity dedicated to supporting people affected by antiphospholipid syndrome (APS). APS is an incurable life-threatening autoimmune condition that causes the blood to clot too quickly. The condition can cause potentially fatal events such as strokes, heart attacks, blood clots in the lung and DVTs. In pregnancy, APS is the most important treatable cause of recurrent miscarriage and can increase the chance of stillbirth up to five times; it is also associated with other complications such as pre-eclampsia, low weight babies and premature births. APS Support UK aims to save and improve the lives of patients with antiphospholipid syndrome by achieving earlier diagnosis and the best possible treatment through awareness, education and research. APS is significantly under-diagnosed and under-recognised condition. From listening to APS community, we have found that:

diagnosis can be a lengthy process, three years being the average time until a patient finally receives a diagnosis there is a lack of medical awareness of the condition patients are often isolated and confused

APS Support UK is working hard to raise awareness and medical education of the little-known disease, as well as providing support for anyone affected by antiphospholipid syndrome.