Action Duchenne

At Action Duchenne we have a clear vision: a world where lives are no longer limited by Duchenne muscular dystrophy.We are working to deliver the vision through our three core objectives:

Building a community by uniting families, educating about Duchenne and raising the profile of the condition to a wider audience. Striving for a more inclusive society by promoting the importance of human equality, day-to-day acceptance of disability and accessibility for those with Duchenne. Developing effective treatments for all by funding research, educating clinicians and researchers, supporting clinical trials and campaigning for access.

We work with people living with Duchenne muscular dystrophy, their families and people around them giving them the support to lead the fullest life possible.